The Boy Whose Skin Fell Off (Epidermolysis Bullosa) | Full Documentary | Reel Truth

The Boy Whose Skin Fell Off (Epidermolysis Bullosa) | Full Documentary | Reel Truth

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A year ago, 36-year-old Jonny Kennedy passed away. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full. Subscribe here for more full length documentaries: https://www.youtube.com/channel/UCFrO-dKhooOuTtix5dia2_g?sub_confirmation=1 Welcome to Reel Truth the home of amazing documentaries! Here you will find full episode documentaries and documentary series, covering true crime, medical, science and more.

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